$1 a Month Challenge for August: Team Maryn

Just as I was searching for someone to help with August’s $1 a month challenge, I received an e-mail from my friend Jamie, from Hippie Tendencies, telling me about her friend’s 5-month-old daughter, Maryn.

Maryn PodollMaryn was born with 22q11.2 deletion syndrome, also called DiGeorge Syndrome.  (For more information on her condition, click here).  Within her first 4 weeks of life, Maryn underwent two open-heart surgeries.  She has remained in the hospital since then, with her family dealing with an emotional roller coaster.  There have been times when they have been on the verge of going home, and times when they have not been sure if Maryn will ever be able to go home.

Jamie had the opportunity to hold Maryn once, and said, “She is a sweet girl who loves to cuddle…She is such a little fighter.”

In honor of Maryn, Jamie is participating, along with other friends family, in the National Congenital Heart Walk.  To make a donation, click here, then click on “Jamie.”  Your donation will be completely anonymous–nobody will see your name or your amount.  If we all can donate $1 to the cause, those $1’s will add up quickly!

Her team is called “Maryn’s Mob,” and the walk is September 7.

For more of Maryn’s story, visit her Caringbridge page here.

4 thoughts on “$1 a Month Challenge for August: Team Maryn

  1. Hi there, I’m Maryn’s mom and am honored that you are helping spread Maryn’s story and help us raise money for the CHD Walk. 1 in 100 children are born with a congenital heart defect, that makes CHD more common than all childhood cancers combined, yet so little funding goes to CHD research. Thanks again!

    • It’s kind of like how, in the disabilities world, autism gets all the funding and attention, as opposed to other conditions, such as sensory processing disorder.

      Hopefully we can help bring awareness to babies like Maryn.

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